Observational Study of Pediatric Rheumatic Diseases: The CARRA Registry
Sponsored by Duke University
About this study
Continuation of the CARRA Registry as described in the protocol will support data collection on patients with pediatric-onset rheumatic diseases. The CARRA Registry will form the basis for future CARRA studies. In particular, this observational registry will be used to answer pressing questions about therapeutics used to treat pediatric rheumatic diseases, including safety questions.
The original Childhood Arthritis \& Rheumatology Research Alliance (CARRA) Registry (Protocol Number: CRNT\_REGST01) was first established in 2010 to advance alliance infrastructure, facilitate expanded clinical and translational pediatric research, and transform the culture of pediatric rheumatology toward universal participation in research. This original CARRA Registry will be referred to throughout the protocol as the CARRA Legacy Registry. Through the creation of a sophisticated informatics infrastructure, provision of comprehensive site support and the engagement of families, patients, and communities, the CARRA Registry will provide the opportunity for affected children at every CARRA Registry site to participate in high-quality clinical and translational research. Continuation of …
Where this study is enrolling (66)
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University of Alabama at Birmingham
Birmingham, Alabama
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Phoenix Children's Hospital
Phoenix, Arizona
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University of California at San Francisco Medical Center
San Francisco, California
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Stanford University Medical Center
Palo Alto, California
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Rady Children's Hospital San Diego
San Diego, California
Show all 66 locations
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Children's Hospital of Los Angeles
Los Angeles, California
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Mattel Children's Hospital at University of California Los Angeles
Los Angeles, California
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The Children's Hospital of Colorado
Aurora, Colorado
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Connecticut Children's Medical Center
Hartford, Connecticut
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Childrens National Medical Center
Washington D.C., District of Columbia
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Johns Hopkins All Children's Hospital
St. Petersburg, Florida
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Nemours Children's Hospital
Orlando, Florida
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University of Florida - Shand's Children's Hospital
Gainesville, Florida
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Georgia Regents University Medical Center
Augusta, Georgia
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Emory Children's Center
Atlanta, Georgia
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University of Chicago Medical Center
Chicago, Illinois
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Ann & Robert H. Lurie Children's Hospital of Chicago
Chicago, Illinois
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Indiana University School of Medicine
Indianapolis, Indiana
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The University of Iowa Hospitals and Clinics (University of Iowa Children's Hospital)
Iowa City, Iowa
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University of Louisville Schoole of Medicine
Louisville, Kentucky
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Massachusetts General Hospital for Children
Boston, Massachusetts
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Boston Children's Hospital
Boston, Massachusetts
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Tufts Medical Center
Boston, Massachusetts
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University of Michigan
Ann Arbor, Michigan
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Helen Devos Children's Hospital
Grand Rapids, Michigan
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Mayo Clinic
Rochester, Minnesota
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University of Minnesota
Minneapolis, Minnesota
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University of Mississippi Medical Center
Jackson, Mississippi
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Children's Mercy Hospital
Kansas City, Missouri
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Saint Louis Children's Hospital
St Louis, Missouri
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The Pediatric Specialty Center at Saint Barnabas
West Orange, New Jersey
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Hackensack University Medical Center
Hackensack, New Jersey
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Goryeb Children's Hospital
Morristown, New Jersey
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Robert Wood Johnson Medical School
New Brunswick, New Jersey
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University of Rochester
Rochester, New York
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Cohen Children's Medical Center of New York
Lake Success, New York
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Columbia University Medical Center
New York, New York
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Hospital for Special Surgery
New York, New York
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Children's Hospital at Montefiore
New York, New York
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Albany Medical College
Albany, New York
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Duke Children's Hospital & Health Center
Durham, North Carolina
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Levine Children's Hospital / Carolinas Medical Center
Charlotte, North Carolina
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Wake Forest Baptist Brenner Children's Hospital
Winston-Salem, North Carolina
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University of North Carolina at Chapel Hill
Chapel Hill, North Carolina
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Sanford Health
Fargo, North Dakota
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Metrohealth Medical Center
Cleveland, Ohio
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Nationwide Children's Hospital
Columbus, Ohio
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Cleveland Clinic Foundation
Cleveland, Ohio
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Cincinnati Children's Hospital Medical Center
Cincinnati, Ohio
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Akron Children's Hospital
Akron, Ohio
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Randall Children's Hospital at Legacy Emanuel
Portland, Oregon
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Saint Christopher's Hospital for Children
Philadelphia, Pennsylvania
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Children's Hospital of Philadelphia
Philadelphia, Pennsylvania
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Penn State Children's Hospital
Hershey, Pennsylvania
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Children's Hospital of Pittsburgh UPMC
Pittsburgh, Pennsylvania
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Hasbro Children's Hospital
Providence, Rhode Island
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Medical University of South Carolina Children's Hospital
Charleston, South Carolina
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Monroe Carrell Jr. Children's Hospital at Vanderbilt
Nashville, Tennessee
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Baylor College of Medicine Pediatric Immunology Allergy Rheumatology
Houston, Texas
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University of Texas Southwestern Medical Center Dallas
Dallas, Texas
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University of Utah Hospitals and Clinics (Primary Children's Hospital)
Salt Lake City, Utah
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University of Vermont Medical Center
Burlington, Vermont
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Children's Hospital of the King's Daughters
Norfolk, Virginia
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Seattle Children's Hospital
Seattle, Washington
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University of Wisconsin, American Family Children's Hospital
Madison, Wisconsin
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Children's Hospital Of Wisconsin
Wauwatosa, Wisconsin
Who can participate
Inclusion criteria
- ✓1. Onset of rheumatic disease prior to age 16 years for JIA and onset prior to age 19 years for all other rheumatic diseases (see appendix A).
- ✓2. Subject (and/or parent/legal guardian when required) is able to provide written informed consent and willing to comply with study procedures.
- ✓3. Subject and/or parent/legal guardian is willing to be contacted in the future by study staff.
Exclusion criteria
- ✕1\. Greater than 21 years of age at the time of enrollment.
Only the research team can confirm whether you qualify. The intake questionnaire is the best way to find out.
Completing a questionnaire on Clinably does not enroll you in a clinical trial or confirm your eligibility. Only the research team can determine whether you qualify to participate. These results are based on the information you provide and are intended to help you start a conversation with the research team.
Trial data sourced from ClinicalTrials.gov.