Back to Clinical Trials
N/ARecruiting

Pulmonary Hypertension Association Registry

Sponsored by Pulmonary Hypertension Association, Inc.

About this study

The PHA Registry (PHAR) is a national study about people who have pulmonary arterial hypertension (PAH) and chronic thromboembolic pulmonary hypertension (CTEPH). PHAR collects information from people with PAH and CTEPH who are cared for in participating PHA-accredited Pulmonary Hypertension Care Centers throughout the U.S. PHAR will determine how people with PAH and CTEPH are evaluated, tested, and treated, and will observe how well these participants do. The goal is to see if people with PH are treated according to recommended guidelines, and to see if there are certain factors that can lead to better or worse outcomes. PHAR will include information about people with PAH and CTEPH in the U.S. who are seen at participating PHA-accredited PH Care Centers. PHAR contains data about patient care and outcomes. Specifically, data in the PHAR includes information on diagnosis; clinical status; socioeconomic status; diagnosis test results; body size; treatment information; interest in participating in clinical trials; family health and social history; and information about smoking, alcohol, or drug use. Participants are followed over time, and provide updates such as changes in therapy, how often participants need to go to the hospital, and survival. Such information may help healthcare providers provide better care.

Where this study is enrolling (52)

  • Arizona Pulmonary Specialists, Ltd.

    Phoenix, Arizona

    Call (480) 614-2000

    This research site can be reached directly by phone. Call to ask about this study.

    Create a free account to get updates on similar Clinical Trials for your conditions.

  • UCSF Medical Center

    San Francisco, California

    I'm interested

  • Cottage Health System - Santa Barbara Pulmonary Associates

    Santa Barbara, California

    I'm interested

  • Stanford University

    Stanford, California

    I'm interested

  • UCSF Benioff Children's Hospital

    San Francisco, California

    I'm interested
Show all 52 locations
Who can participate

Inclusion criteria

  • ✓All age groups
  • ✓Written informed consent
  • ✓Pulmonary arterial hypertension (PAH), chronic thromboembolic pulmonary hypertension (CTEPH), or pediatric PH due to developmental lung disease
  • ✓Within 6 months of first outpatient visit at a PH Care Center

Exclusion criteria

  • ✕Diagnosis of WSPH Group 2 pulmonary hypertension
  • ✕Diagnosis of WSPH Group 3 pulmonary hypertension, except PH due to developmental lung disease
  • ✕Diagnosis of WSPH Group 5 pulmonary hypertension

Only the research team can confirm whether you qualify. The intake questionnaire is the best way to find out.

Completing a questionnaire on Clinably does not enroll you in a clinical trial or confirm your eligibility. Only the research team can determine whether you qualify to participate. These results are based on the information you provide and are intended to help you start a conversation with the research team.

Trial data sourced from ClinicalTrials.gov.