TSC Biosample Repository and Natural History Database
Sponsored by National Tuberous Sclerosis Association
About this study
The TSC Biosample Repository collects and stores samples of blood, DNA, and tissues that scientists can request to use in their research. The samples we collect are all linked to clinical data in the TSC Natural History Database. The TSC Natural History Database captures clinical data to document the impact of the disease on a person's health over his or her lifetime. This data may be collected retrospectively or prospectively.
The purpose of the project which is sponsored by the TSC Alliance is to learn more about tuberous sclerosis complex (TSC) which may lead to new treatments for conditions that affect different areas of the body such as the brain, kidney, heart, lungs, and skin. The TSC Alliance TSC Biosample Repository (BSR) was established to provide a central biobank at the Van Andel Institute (VAI) Biorepository in Grand Rapids, Michigan for the collection of blood, tissues, and cells from a vast number of individuals with TSC. The TSC Alliance Natural History Database (NHD), established in 2006, will serve as the central repository of de-identified clinical data associated with biosamples collected from individuals with TSC. The NHD research project involves collection of retrospective and prospective …
Where this study is enrolling (23)
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University of Alabama Birmingham
Birmingham, Alabama
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University of California Los Angeles
Los Angeles, California
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Loma Linda University Children's Hospital
Loma Linda, California
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The Children's Hospital
Denver, Colorado
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Nicklaus Children's Hospital
Miami, Florida
Show all 23 locations
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Chicago Comer Children's Hospital Neurogenetic Clinic, University of Chicago
Chicago, Illinois
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University of Iowa Hospitals and Clinics
Iowa City, Iowa
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TSC Alliance
Silver Spring, Maryland
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Boston Children's Hospital
Boston, Massachusetts
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Massachusetts General Hospital
Boston, Massachusetts
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Minnesota Epilepsy Group
Roseville, Minnesota
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Washington University in St. Louis
St Louis, Missouri
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Children's Mercy Research Institute
Kansas City, Missouri
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University of Rochester Medical Center
Rochester, New York
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New York University Medical Center
New York, New York
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Cincinnati Children's Hospital Medical Center
Cincinnati, Ohio
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Cleveland Clinic Foundation
Cleveland, Ohio
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University of Pennsylvania Medical Center
Philadelphia, Pennsylvania
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Le Bonheur Children's Hospital
Memphis, Tennessee
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Scottish Rite Hospital for Children
Dallas, Texas
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Texas Childrens Hospital Baylor College of Medicine
Houston, Texas
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Memorial Hermann-Texas Medical Center (University of Texas Houston)
Houston, Texas
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Children's National Medical Center
Fairfax, Virginia
Who can participate
Inclusion criteria
- ✓Diagnosis of tuberous sclerosis complex or lymphangioleiomyomatosis (sporadic LAM).
Only the research team can confirm whether you qualify. The intake questionnaire is the best way to find out.
Completing a questionnaire on Clinably does not enroll you in a clinical trial or confirm your eligibility. Only the research team can determine whether you qualify to participate. These results are based on the information you provide and are intended to help you start a conversation with the research team.
Trial data sourced from ClinicalTrials.gov.